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I survived brain surgery ... now what?

Katelyn Cullum | The Cord | Lifestyles | April 8th, 2013



WATERLOO (CUP) - "I never thought this would happen to me." Those are the words out of everyone's mouth after they have gone through something bad. No one expects it, no one is prepared for it and no one knows how to deal with it.

Unfortunately, I spoke those choice words at the beginning of October, when I woke up in an Intensive Care Unit (ICU) from a medically induced coma due to my brain surgery.

Loaded sentence, eh?

I wish I could follow it up with a wicked story that makes me seem cool and dangerous, but this all happened because I went with my friend to get a piercing and fainted because I saw him flinch.

I ended up with staples in the back of my head because I had cut it open and was transferred to Hamilton General Hospital so my brain could be monitored. This was because I had an epidural hematoma, which is an accumulation of blood between the inside of my skull and outer covering of my brain.

I was admitted on a Monday and the following Saturday I was rushed into emergency surgery that required the removal of a portion of my skull because I had a seizure since my brain was swollen and bleeding.

Fortunately, I don't remember any of this and woke up in the ICU about three days later.

This story isn't intended to make you feel sorry for me, that is the last thing I want. But I do want to talk about this because I know that other young people have experienced a brain injury similar to mine and I want to express how difficult it is to get back into the swing of things, especially school, when you're hit with such an event.

"It goes without saying, there is a lot going on in the brain," said Jayar La Fontaine, the acquired brain injury system navigator at the Community Head Injury Resource Services. It's a complicated organ and damaging it can result in serious consequences and obstacles.

I don't consider this a burden; I won't say that I'm glad this happened to me but I'm a firm believer in the common phrase that "everything happens for a reason."

This injury brought old people into my life again, because they were concerned about me. It brought new people into my life because they had to take care of me for two weeks in the hospital. It also made me realize just how lucky I am to have such wonderful people and amazing friendships in my life.

To all my friends reading this, I'm talking about you, so pat yourself on the back. Apparently the first thing I asked about when I woke up (aside from making my dad promise to buy me the new iPhone 5. Yes, I'm a brat) was school. I don't know if that makes me a dork or just makes me worrisome, but it was a thought that was constantly on my mind.

Being a fourth-year history student, foregoing the semester was not something I could afford. But at the same time, I knew the obstacles I'd be facing.

Catching up on missed seminar readings was something I feared but wanted to conquer. Thankfully, I have three amazing professors that were completely understanding and willing to work with me to succeed this semester.

That is essentially where the easiness ends.

Because my brain is still swollen from the surgery, the front part is pushing on my eyes and making my vision unfocused. My eyes are essentially back to normal now but after I got discharged I was seeing double, even triple.

So now that I'll forever be under the label of "brain injury girl," I don't know how to continue my life.

For me, the hardest part of this whole thing has been taking the severity of my injury seriously because I don't remember any of it. So when I tell people about the fact that I had brain surgery, I can't help but laugh.

I'm not laughing at my injuries, I know they are real and life threatening and I appreciate all the work my doctors did to keep me alive. But try saying "I had brain surgery" out loud, it feels weird right? Especially as a university student.

When asked how to take preventive measures in regards to brain injuries, Azim Ahmed, communications and fund development officer at the Ontario Brain Injury Association (OBIA) stressed that "the most important thing is being aware of what's around you."

He went on to say that obviously it's impossible to prevent accidents from happening, but being aware of your surroundings and being logical in common situations, like "when riding a bike, obviously helmets are important," is smart. Fontaine added that you should "really think about the risks you are taking."

Another thing I've found difficult with this whole situation is that, since a brain injury is internal and the only thing that tells people I have one is my hidden scars and the shaved part of my head, most people don't believe it.

According to the OBIA, brain injuries are the number one killer and disabler of people under 44. So clearly, we need to be more aware of internal injuries. They're real and they happen to students.

Especially since young people are so active, brain injuries during sports are common. According to the OBIA, one in five sport-related injuries are brain injuries.

So the next time you see someone acting out, don't be so quick to judge. Don't assume that they are just being dumb and remember that they could have a story like mine and just didn't get as lucky.

One in 26 Canadians are living with an acquired brain injury, according to OBIA.

Within the next hour, six Canadians will suffer from a brain injury. Whether that is from fainting in a piercing shop, or in another accident, it is a common occurrence.

As the OBIA stated on their website, an acquired brain injury is 15 times more common than a spinal cord injury, 30 times more common than breast cancer and 400 times more common than HIV/AIDS.
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